World Thyroid Register. Opprop / opråb for syge i thyreoidea!

[Babe]

Hermed gjort

[Mod]

Modtaget d. 22. juli 2010:

Kære ejere, brugere og læsere af Thyroid-websites i Europa

Venligst udsend følgende opråb og de meget vigtige links på dine thyroid-websteder og ydermere spred ordet over Internettet på andre Thyroid Support Forums. Du, dine brugere, og læsere på jeres thyroid-websteder opfordres til at bidrage ved at udfylde besvarelsesskema til brug for "VERDENS REGISTER AF UNDTAGELSER FRA EFFEKTEN AF BEHANDLING KUN MED SYNTETISK T4". Vi håber at dette REGISTER vil en dag hjælpe jer/dem, og hjælpe alle andre der lider under ensidig T4-behandling i hele verden. Vi er nu så mange, at vi er ved at udgøre en betydelig PATIENT-MAGT. Lad os bruge den i denne gode sags tjeneste.

Vi er i færd med at støtte om oprettelsen af den første nogensinde "VERDENS REGISTER AF UNDTAGELSER FRA EFFEKTEN AF BEHANDLING KUN MED SYNTETISK T4". Formålet med dette register er at henlede de ansvarlige myndigheders opmærksomhed på et overvældende behov for en hurtig revision af den eksisterende protokol for diagnosticering og behandling af dem, der lider af symptomer på hypothyreose.

BEMÆRK: Dette spørgeskema er til brug for (kun) de patienter, der forgæves var behandlet med kun syntetisk T4 og som ikke er blevet hjulpet af behandlingen før deres behandling med syntetisk T4 er blevet suppleret med tilskud af Liothyronine T3 eller erstattet med Thyroid USP (naturlige thyroid ekstrakt). Bemærk venligst, at alle besvarelser bliver automatisk bearbejdet online.

EDIT/06.09.2018: https://www.tpauk.com/main/article/t...4-monotherapy/

Venligst spred også ordet om Dr. Gordon Skinners "VERDENS THYROID REGISTER", hvor vi har brug for mindst 50.000 underskrifter. Se nedenfor:

Dr. Gordon Skinner i Storbritannien mener oprigtigt, at den eneste vej frem for at få retfærdighed for alle dem der lider af symptomer på hypothyroidism, som følge af en ensidig behandling med T4 - er at danne en World Thyroid Register med mindst 50.000 underskrivere, der en gang i fremtiden er villige til at bidrage med et engangs bidrag på £ 20 eller 30 dollars, hvilke vil blive anvendt til at etablere en verdensomspændende kampagne for at rette op på denne uret. Dr Skinner mener, at vi har en stor sag at kæmpe mod de offentlige Sundhedsstyrelser og de medicinske behandlingssteder, for at opnå en medicinsk retfærdighed for mindst en kvart million patienter i Storbritannien samt formentlig millioner over hele verden, selv om han håber at dette bliver ikke nødvendigt.

I den sidste ende dog kan vi ikke acceptere, at alle disse patienter bliver opgivet og overladt til en livslang, dårlig eksistens på grund af en uforståelig forråelse og forhærdelse blandt lægestanden og de medicinske virksomheder (som nægter at benytte alle eksisternede (læge)midler til behandling af "T4-resistent" hypothyreose/red.). Vi skal gøre noget nu, i første omgang ved at støtte Dr. Skinners VERDENS THYROID REGISTER med en underskrift.

Spørg også din familie og venner og bed dem om at være med til at støtte denne sag ved at skrive under på WORLD THYROID REGISTER.

Many thanks

Sheila Turner
Thyroid Patient Advocacy
http://www.tpauk.com
"Reel løsning for reel lidelse"

Ovenstående er en oversættelse (efter bedste evne) af en e-post vi har modtaget fra http://www.tpa-uk.org.uk d. 22. juli 2010 kl. 19:03 :

Dear Thyroid web site Owner

Please will you be kind enough to post the following very important links and messages in your thyroid web sites and/or Internet Thyroid Support Forums. Please will you urge all of the readers of your web sites and forum members to do their bit by completing the very important WORLD REGISTER OF COUNTEREXAMPLES TO LEVOTHYROXINE (T4)-ONLY THERAPY, which we hope, one day, will help them, and help all other sufferers throughout the world. We now have PATIENT POWER - LET'S USE IT AND MAKE THIS HAPPEN.

Will you also please advertise Dr Gordon Skinner's WORLD THYROID REGISTER at the same time as we need over 50,000 signatures if that's possible.

See below:

"We are in the process of helping with the creation of the first ever WORLD REGISTER OF COUNTEREXAMPLES TO LEVOTHYROXINE (T4)-ONLY THERAPY. The objective of this Register is to draw to the attention of those responsible authorities the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the those suffering the symptoms of hypothyroidism.

PLEASE NOTE: This questionnaire is for the use of ONLY those people who were prescribed levothyroxine (T4-only) that failed to relieve or eliminate their symptoms, who then started using a T3 containing hormone (liothyronine, Cytomel or natural thyroid extract). Please note that all responses will be collated automatically online.

EDIT/06.09.2018: https://www.tpauk.com/main/article/t...4-monotherapy/

***********

"Dr Gordon Skinner in the UK has made it absolutely clear that he sincerely believes that the only way forward to get justice for all those suffering the symptoms of hypothyroidism, is to form a World Thyroid Register with at least 50,000 signatories, who, at a future date, may be asked to contribute a one off payment of £20 or perhaps $30, which will be used to mount an effective campaign to redress this problem. Dr Skinner believes that we have a great case to make for medical justice for the quarter million folks in the UK and probably millions world-wide, against government offices, and certain medical offices, but he sincerely hopes that this will not be necessary. However, at the end of the day, we cannot allow all these patients to be abandoned to a poor quality existence because of inexplicable obduracy among the medical profession and the medical establishment. We MUST do something now. SO PLEASE, TAKE JUST A MOMENT TO SIGN DR SKINNER'S REGISTER HERE and please ask your family and friends to sign it also https://web.archive.org/web/20150929...gister.com:80/

Many thanks

Sheila
Thyroid Patient Advocate
http://www.tpauk.com

Mottatt idag:

FIRST WORLD REGISTER OF COUNTEREXAMPLES TO T4-ONLY THERAPY.

This short, but extremely important survey is applicable only to those of you who continued to suffer symptoms on T4-only therapy, and who found those symptoms were mitigated or disappeared once you were started on a T3 hormone containing product.

The Register of counterexamples will be used to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism and challenge those studies previously undertaken (900 participants) that concluded that T4/T3 combination worked no better than T4-only.

Counterexamples prove incontrovertibly that endocrinology's stance is dangerously wrong. Doctor's continuance of practising in line with the T4-only treatment diktat for all sufferers of the symptoms of hypothyroidism is pernicious. The number of patient counterexamples, at the present time, stands at 1785.

A counterexample is a situation which fits the concept or premise of an idea but produces a different result. To be responsible, a scientist who finds a counterexample to his idea, must limit or abandon his idea as unworkable or not reliable. The T4-therapy does not work for all.

If you fit this category, please will you complete the 3 questions with either 'YES', 'NO' or N/A. All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary.

If you are a member of other Internet thyroid forums, please will you copy this message there so others can take the opportunity of registering their thyroid status please.

Many thanks

Sheila (Chair) http://www.tpauk.com

EDIT/06.09.2018: https://www.tpauk.com/main/article/t...4-monotherapy/

[Anisa]

A counterexample is a situation which fits the concept or premise of an idea but produces a different result. To be responsible, a scientist who finds a counterexample to his idea, must limit or abandon his idea as unworkable or not reliable. The T4-therapy does not work for all.

If you fit this category, please will you complete the 3 questions with either 'YES', 'NO' or N/A. All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary.

If you are a member of other Internet thyroid forums, please will you copy this message there so others can take the opportunity of registering their thyroid status please.

Many thanks

Sheila (Chair) http://www.tpauk.com

EDIT/06.09.2018: https://www.tpauk.com/main/article/t...4-monotherapy/

In my view ... Ultimately, the syntetic T4-alone treatment does not work for anyone. This treatment works for no one in the end.

What about when the "scientific" medical profession ignores the body's natural needs for T1, T2 hormones and calcitonin?

What about this concept, using our own digestive system as factories for the production of T4 from the many syntetic pro-drugs that are invented (and patented) for the purpose, but do not take into account that everyone's digestive systemmer is different and no one can guarantee the same effect as the hormones our bodies would produce, if we were not sick??

Why do we let ourselves be persuaded to believe that this synthetic T4-like result of this production should work just as well as genuine hormones?

And why do we accept the lie that synthetic T4 works just as widely and effectively as desiccated thyroid when it is not the truth? It's the biggest lie of all!

Click on Sheila link and answer the questions, although preliminary only available in Swedish and Danish. If not for our own so for the sick in the future. You never know when your and my child get hit by both this damned disease, and this inferior treatment, which ultimately keeps us alive but not living!

The British Thyroid Association has a strong medical-political influence on medical treatment of thyroid diseases throughout Europe, so by supporting this call from tpa-uk.org.uk - we also support ourselves in Scandinavia.

Oversat: I min verden, i den sidste ende virker syntetisk T4-behandling ikke for nogen. Denne behandling virker for ingen, i den sidste ende.

Hvad med når den "videnskabelige" lægestand ignorerer kroppens naturlige behov for T1, T2 hormoner samt calcitonin?

Hvad med denne koncept, at anvende vores eget fordøjelsessystem som fabrikker til fremstilling af T4 af de mange syntetiske pro-stoffer, der er opfundet (og patenteret) til formålet, men som ikke tager højde for at alles fordøjelses systemmer er forskellige, og ingen kan derfor garantere samme effekt som de hormoner vores kroppe selv ville fremstille, hvis vi ikke var syge??

Hvorfor lader vi os overtale til at tro på, at dette syntetiske T4-lignende resultat af denne produktion skulle virke lige så godt som de ægte hormoner?

Og hvorfor accepterer vi løgnen om at syntetisk T4 virker lige så bredt og effektivt som thyroid-lægemidler når det ikke er sandheden? Det er den største løgn af alle!

Klik på Sheilas link og besvar spørgsmål, selv om de foreløbigt kun findes på svensk og på dansk. Om ikke for vores egen skyld, så for de syge i fremtiden. Du kan aldrig vide hvornår dit og mit barn bliver ramt af både denne satans sygdom, og af denne underlødige behandling, der i den sidste ende holder os i live men ikke levende!

Den britiske Thyroid Association har en stor medicinsk politisk indflydelse på behandlingen af thyroidea sygdomme i hele Europa, så ved at støtte dette opråb fra tpa-uk.org.uk - støtter vi også os selv i Skandinavien.

[Admin]

Mottatt idag:

FIRST WORLD REGISTER OF COUNTEREXAMPLES TO T4-ONLY THERAPY.

This short, but extremely important survey is applicable only to those of you who continued to suffer symptoms on T4-only therapy, and who found those symptoms were mitigated or disappeared once you were started on a T3 hormone containing product.

The Register of counterexamples will be used to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism and challenge those studies previously undertaken (900 participants) that concluded that T4/T3 combination worked no better than T4-only.

Counterexamples prove incontrovertibly that endocrinology's stance is dangerously wrong. Doctor's continuance of practising in line with the T4-only treatment diktat for all sufferers of the symptoms of hypothyroidism is pernicious. The number of patient counterexamples, at the present time, stands at 1785.

A counterexample is a situation which fits the concept or premise of an idea but produces a different result. To be responsible, a scientist who finds a counterexample to his idea, must limit or abandon his idea as unworkable or not reliable. The T4-therapy does not work for all.

If you fit this category, please will you complete the 3 questions with either 'YES', 'NO' or N/A. All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary.

If you are a member of other Internet thyroid forums, please will you copy this message there so others can take the opportunity of registering their thyroid status please.

Many thanks

Sheila (Chair) http://www.tpauk.com

EDIT/06.09.2018: https://www.tpauk.com/main/article/t...4-monotherapy/

Hi Sheila

We've created a thread about your call as early as July 2010 and we have updated this thread with your latest message.

Thanks for your great work, despite a response that could easily be larger. Unfortunately, the disease specificity paralyzes both, initiative and battle ability of patients, while salaried physicians and medical organizations have plenty of time and resources to maintain their treatment policy, regardless of how many patients it hits and damages.

Once again, thank you

Thyroid Forums in Norway

[Vigdis]

Det som er bra med denne spørreundersøkelsen, er at du kan trykke på dansk eller svensk flagg og få spørsmålene på dansk eller svensk. For noen blir engelsk helt uoverkommelig. Dette er bra tenkt fra de som står bak

Jeg har svart, har du?

[Admin]

Det som er bra med denne spørreundersøkelsen, er at du kan trykke på dansk eller svensk flagg og få spørsmålene på dansk eller svensk. For noen blir engelsk helt uoverkommelig. Dette er bra tenkt fra de som står bak

Jeg har svart, har du?

Ja, der er svaret! Forhåbentlig så mange som muligt overvinder hypothyreose-passivitet og energiløshed, og besvarer denne spørgeundersøgelse. Uanset nylig syge, eller Levaxin-syge, eller folk som anser dem selv for velbehandlede - er det (som regel) kun spørgsmål om tid, sædvanligvis senest omkring overgangsalderen - hvor hypothyreose igen tager fat i struben på dem, der ellers troede de var velregulerede...

... tag derfor og besvar denne spørgeundersøgelse, så antallet af henvendelser stiger, og med det stiger også vores chancer - den dag det igen går galt!

Det kan godt være, at man kan vænne sig til alt, så grundigt at man ikke længere kan skelne mellem f.eks. sygdommens effekt på helsen, eller alderens. Men det er og forbliver en kendsgerning, at patienter i Levaxin-behandling er aldrig og aldrig bliver sikret mod tilbagefald, særlig de "autoimmune", så selv om du kun er 25, 35 eller kun 45 år gammel og der er mange år endnu til du bliver gammel - tag og besvar denne spørgeundersøgelse allerede nu....

.... så måske får du/vi en chance senere.

[Mod]

Hi Sheila

We've created a thread about your call as early as July 2010 and we have updated this thread with your latest message.

Thanks for your great work, despite a response that could easily be larger. Unfortunately, the disease specificity paralyzes both, initiative and battle ability of patients, while salaried physicians and medical organizations have plenty of time and resources to maintain their treatment policy, regardless of how many patients it hits and damages.

Once again, thank you

Sonjas Stoffskifteforum in Norway

Sheila har svart:

Thanks for responding Sonjas Stoffskifteforum. I have rather neglected to get the message out recently regarding this register as I have been so busy on other things, but felt the need to start collecting names again. I need to keep this running as long as possible to collect as many counterexamples as we can, because this is one case where numbers really DO matter. I too would have thought we would have had a much greater response, but it is always the same with thyroid patients I have found out. However, onwards and upwards and thanks for all the help you have given us so far.

Luv - Sheila