The Thyroid War ! Medical profession battling thyroid patients !

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Tuesday, 1 October 2013 - 10.00am.

Round Table Meeting at the Scottish Parliament, Edinburgh, EH99 1SP (starting 10.00a.m.) to discuss the Thyroid Petition PE10463.

The meeting will take place in Committee Room starting at 10.00 am and the meeting will be recorded live, so keep this link handy:

http://www.scottish.parliament.uk/ne...tre/30875.aspx.

If you are unable to watch at that time, the link will remain active, for when you are able.

Sheila wrote:

Most of you will now be aware that the Round Table Meeting that took place last Tuesday (1 October 2013) with Scottish Government Representatives (and others) If you have not watched the video of this important Debate, you can watch it here, but you need an hour and a half to listen to it all.

As far as I am concerned, it did not go well and there is a lot of work still needed by us to get the 'powers that be' to listen to us, which you will see comes across loud and clear that they are still not prepared to do - YET!. http://www.scottish.parliament.uk/ne...tre/41423.aspx

At the end of this Debate, it was decided that further evidence should be gathered from dissatisfied patients, who are willing to give details to show their level of unhappiness with their diagnosis/lack of diagnosis - treatment/lack of treatment, etc., after presenting with symptoms and signs of hypothyroidism to their medical practitioner.

Elaine Smith MSP would like to hear from 100 + dissatisfied patients. Stories can come from anybody, wherever you live, but they are particularly looking to gather stories from Scottish Thyroid/Adrenal Patients who have been left in an unhappy state. All personal details that could identify you in any way would naturally be removed under The Data Protection Act 1998 (of which TPA is registered) before being passed on elsewhere. However, it is IMPORTANT THAT YOU IDENTIFY YOUR COUNTRY OF RESIDENCE. Please send your stories (the concise version please) direct to me sheila (at) tpauk (dot) com and I will forward these on to Elaine Smith MSP.

Some ideas!

How long have you suffered symptoms?
How many symptoms have you suffered?
How long did your doctor take to recognise your symptoms?
Are you showing any 'signs'?
How many 'signs' are you showing?
Have you been given a diagnosis?
What was your first diagnosis?
Have you been given any other diagnoses?
Did your doctor test your TSH and Free thyroid hormones?
Did your doctor test TSH only?
Did your doctor test Free T3?
What were the results? (You need to give the reference range for each of the tests that were done here)
What were you prescribed?
After treatment, do you still have symptoms?
Were your adrenals checked?
Were your levels of vitamins/minerals etc checked?
Were you referred to an endocrinologist?
How happy were you with your overall treatment?
Did your doctor satisfactorily answer all your questions?

Please add any other relevant information that fits your specific case in your story.

Thank you for participating. You are helping to bring change.

Sheila
Thyroid Patients Advocacy

[Vigdis]

Jeg håper de får til en bedring i helsevesenet sitt. Det er nok mange maktglade leger som ønsker å ha det slik det er, de mener nok det er bra nok