World Thyroid Register. Opprop / opråb for syge i thyreoidea!

[Mod]

Hi Sheila

We've created a thread about your call as early as July 2010 and we have updated this thread with your latest message.

Thanks for your great work, despite a response that could easily be larger. Unfortunately, the disease specificity paralyzes both, initiative and battle ability of patients, while salaried physicians and medical organizations have plenty of time and resources to maintain their treatment policy, regardless of how many patients it hits and damages.

Once again, thank you

Sonjas Stoffskifteforum in Norway

Sheila har svart:

Thanks for responding Sonjas Stoffskifteforum. I have rather neglected to get the message out recently regarding this register as I have been so busy on other things, but felt the need to start collecting names again. I need to keep this running as long as possible to collect as many counterexamples as we can, because this is one case where numbers really DO matter. I too would have thought we would have had a much greater response, but it is always the same with thyroid patients I have found out. However, onwards and upwards and thanks for all the help you have given us so far.

Luv - Sheila